Lara Bloom, the Co-Executive Director of the Ehlers-Danlos Society, spoke on Nov 22, 2016. In her remarks she described the mission of the new international charity, The Ehlers-Danlos Society (previously EDNF), and the process of the international symposium from May 2016.
The video is 1 hour 35 minutes.
Here is the link for Lara’s presentation slides
Video download link:
Here are the pictures from the meeting: