Tag: Lara Bloom

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Lara Bloom talk for Nov 22, 2016

Lara Bloom, the Co-Executive Director of the Ehlers-Danlos Society, spoke on Nov 22, 2016. In her remarks she described the mission of the new international charity, The Ehlers-Danlos Society (previously EDNF), and the process of the international symposium from May 2016.

The video is 1 hour 35 minutes.

 

[videojs mp4=”https://s3.amazonaws.com/streamfield/LaraBloomNov22%2C2016web.mov”]

 

Here is the link for Lara’s presentation slides

lara-ehlers-danlos-society-mission-talk

Video download link:

https://s3.amazonaws.com/streamfield/LaraBloomNov22%2C2016web.mov

Here are the pictures from the meeting:

img_5692 img_5690 img_5688 img_5683

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EDS Documentary NY Premiere and Q&A with writer/lead 8/19/15

Issues_with_my_TissuesWednesday night we screened the NY premiere of Issues With My Tissues with Lara Bloom at the 92nd St. Y

Lara Bloom, the CEO of EDS International, brought her infectious enthusiasm to the meeting and answered questions about this truly inspirational film of trials and triumph. Shane Robinson, the Executive Director of EDNF also attended.

“The documentary follows Lara Bloom’s journey as she became the first person with EDS to walk the London Marathon and features interviews with medical professionals, families with EDS and individuals who have suffered from misdiagnosis.” – IMDB

Watch it here now! 48 minutes

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