The EDS-NYC group is a loose collection of people and family members with Ehlers Danlos Syndrome in the New York area.
Based on the incidence of Ehlers Danslos Syndrome in the population, one would expect thousands of members in the NYC area. However EDS is dramatically under diagnosed, and incredibly misdiagnosed. The result is that there are many people walking the streets with EDS who do not know it.
Learning one has EDS is frequently met with relief as a medical history of many unanswered questions all fall into place.
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