EDS-NYC Meeting Monday, February 25, 6-8:30 PM

The EDS-NYC local support group will meet Monday, February 25, 6:00 PM, at 1395 Lexington Avenue, New York, NY.

We welcome all, especially those who are not yet diagnosed but have questions.

Again we meet at the 92nd Street Y. 1395 Lexington is between 91st and 92nd streets. For transportation information, the nearest subway is the number 6, which stops at 96th St.

Please RSVP via comment (or email) so we can estimate group size. The group is growing rapidly and outgrew our old space. I may get swamped and not reply to each RSVP, but the count is important.

As our numbers grow we really have the opportunity to chart a course for this group and coordinate efforts to really help one another on a larger scale. This meeting will focus on ideas and goals, skills and resources, unmet needs and opportunities, whatever priorities we can agree to.

  • The EDS-NYC Dr. list continues to be well received. Are there other resources we could pool and provide?
  • May will be EDS Awareness Month. Would anyone like to help a bit on coordinating our efforts?
  • The feedback from Dr, Jessica Davis’s talk last month was extremely favorable. Perhaps we could find help arranging more speakers?

This is a time of many opportunities. Now is a chance to pick a few priorities, and plant the seeds for more good meetings.

Hope to see you there,


3 Replies to “EDS-NYC Meeting Monday, February 25, 6-8:30 PM”

  1. I live in upstate N.Y, and I would love a doctor”s list! I have been on pain management for EDS hyper-mobility for the last two years (morphine for er, percocet for ir, and valium for my t.m.j.) ,but I have recently gone off med’s (except for the ibu and tylenol) to try and find an alternative. Any one have any ideas? Thank you!

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